Two women from Barnard Castle and Guisborough are advocating for increased research into lobular breast cancer, highlighting a significant funding shortfall for studies on this type of cancer. Silent vigils have been organized by groups of women campaigning for more financial support for lobular breast cancer research.
significant funding shortfall: what to know
Calls for Increased Funding
The Lobular Moon Shot Project is urging the government to allocate £20 million for a research initiative focused on the basic biology of lobular breast cancer. This form of cancer accounts for 15% of all breast cancer cases, yet campaigners argue it is under-studied and under-recognized, primarily because it rarely forms lumps like other types of breast cancer.
Katie Swinburne, 50, from near Barnard Castle, was diagnosed with lobular breast cancer in 2023. She underwent a treatment program designed for ductal breast cancer, the more common type. Swinburne stated that she had never heard of lobular breast cancer prior to her diagnosis, and her mammogram had been clear. It was only after noticing a slight change in her breast and undergoing an ultrasound and biopsy that she received her diagnosis, which revealed stage three cancer. Following her diagnosis, she underwent surgery, four months of chemotherapy, oral therapy, and radiation.
Personal Experiences and Advocacy
Melissa Robinson, from Guisborough, also received a diagnosis of lobular breast cancer in 2023. She expressed gratitude for discovering a lump, which led to her diagnosis. Robinson described the moment as a shock, initially believing the lump to be a cyst. She emphasized the emotional toll of being diagnosed with cancer.
In a show of solidarity, three separate vigils were held outside key government locations, including Downing Street and the Department of Health and Social Care. Each vigil saw 22 women gather to raise awareness, symbolizing the 22 women diagnosed with lobular breast cancer in the UK every day. The group concluded their vigil by singing “You’ll Never Walk Alone” in memory of Dr. Susan Michaelis, the project founder.
Swinburne shared her frustrations about the challenges faced in securing appropriate treatment, stating, “It’s hard having to fight for a treatment, especially when you’re undergoing chemotherapy, radiotherapy, and oral treatment.” She expressed the exhaustion that comes with advocating for recognition and funding for a specific treatment tailored to lobular breast cancer.
Robinson highlighted the importance of participating in the vigil as a way to contribute positively and support future generations. She remarked, “I thought it was a great way to give something back and try and help others.”
A government spokesperson acknowledged the issue, stating that lobular breast cancer often goes undetected in many women. They confirmed that discussions had taken place with the Lobular Moon Shot Project to explore how to advance research in this critical area. The spokesperson also noted that the national cancer plan emphasizes research to improve patient outcomes, aiming to integrate scientific breakthroughs into the NHS more rapidly.
Source: Original report